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Please consider a year-end contribution to SafeMinds
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One in six children have learning
disabilities. One in 150 children have
autism. Do you believe it is possible that
there is an environmental cause?
If so, we urge you to consider making a
year-end donation to SafeMinds.
SafeMinds was the first organization to link
the mercury based preservative thimerosal in
vaccines with the symptoms of autism. Since
that time, we have continued to work to end
the health and personal devastation caused by
needless exposure to mercury through:
- Aggressively educating government
agencies, legislators, manufacturers and
retailers on the scientific research
regarding mercury in the environment and in
medicines and the urgent need for its removal
from all manmade sources.
- Funding, encouraging and engaging
researchers to help us scientifically
understand how mercury causes harm, how
harmful effects can be reduced or eliminated
for future generations, and how effective
treatments can be developed for those already
exposed. Safe Minds has funded several animal
model studies that have yielded important
results on the toxicity of mercury in vivo.
- Serving as a clearinghouse for the
gathering and dissemination of sound and
relevant scientific research and coordinating
peer-to-peer review opportunities for those
efforts. We evaluate and critique new basic
and clinical scientific and epidemiological
studies on mercury and ensure that readers
and the media receive accurate and balanced
portrayals of the evidence.
- Providing information to promote
awareness to families and clinicians in order
to education them about the issue. Safe
Minds is proud to be a sponsor of Age of
Autism website that provides a well read
forum to broadcast information on the dangers
of Mercury.
Your contribution to SafeMinds will advance
research and public outreach to stop the
needless exposure to mercury, the second most
dangerous toxin on earth.
We owe it to those children who have already been tragically injured not to give up on our research efforts. But we can't do this without your help. Please click here to make a donation.
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Mercury in toys, cameras, watches and other common household items
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From the SafeMinds Environmental Committee
In November of 2008, the U.S. Environmental
Protection Agency announced a web site
listing thousands of common household items
that contain mercury, including popular
infant toys, digital cameras, watches, DVD
players and camcorders.
Acknowledging the danger of mercury, both for
the individual handling the product and the
greater environmental toxic load, the EPA
site recommends the use of mercury-free
alternatives.
"The optimal way of preventing exposure to
elemental mercury is to reduce the use of
mercury-containing products by using
alternatives whenever possible. In most
cases, non-mercury alternatives exist for
mercury-containing products," the web site
states.
While the EPA falls short of banning mercury
containing products, it provides consumers
information to keep safe and do their part to
decrease the overall mercury contamination of
the environment. SafeMinds applauds this
edict and hopes that the next logical step
will be taken with a federal mandate for the
use of mercury-free alternatives.
One extremely common item on the EPA's
website is button-cell batteries, coin-shaped
batteries that provide power to thousands of
portable electronic devices, including
hundreds of children's toys. Mercury from
these batteries can be released to the
environment during various stages of the
product life cycle, but primarily during
manufacturing and disposal. Because they are
unregulated at a state or federal level, toys
and devices containing these batteries do not
have to be labeled. It is legal to dispose of
them in the household trash; and they rarely
are collected for recycling. Because button
batteries are not targeted for recycling,
almost all of this mercury presumably ends up
in the municipal solid waste stream where it
is either incinerated or land filled.
Toys that contain these mercury-containing
batteries include "Teethable Tunes" and
"Giggle Teethers," music-making teethers
designed for infants to chew on. Other
products include Panasonic DVD players, JVC
digital cameras and Swatch watches.
Other mercury containing products flagged on
the EPA's website include dental amalgams,
fish, fluorescent light bulbs, thermometers
and vaccines. For a complete listing, please
visit the site at www.epa.gov/mercury.
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Researchers & Department of Defense Question Multiple Vaccine Administration
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Safeminds asks, "Is Mercury a Common Factor?"
Two new reports announced last week call into
question the safety of the Centers for
Disease Control (CDC) decade's old policy of
routinely administering multiple vaccines
concurrently.
Mitochondrial Disease in Autism Spectrum
Disorder Patients, published last week in
PLOS One by investigators from the Cleveland
Clinic, Johns Hopkins Kennedy Krieger
Institute and Massachusetts General Hospital
concluded that disturbance in mitochondria
(energy production cells) is an underlying
mechanism in a subset of individuals with
autism. "There might be no difference between
the inflammatory or catabolic stress of
vaccinations and that of common childhood
diseases" they said, and "large,
population-based studies will be needed to
identify a possible relationship of
vaccination with autistic regression in
persons with mitochondrial cytopathies."
In a November 26th response to Congresswoman
Carolyn Maloney concerning adverse vaccine
events, Colonel Renata Engler of the DOD
Vaccine Healthcare Center commented on their
collaboration with the CDC, "We have
preliminary findings from one of our many
on-going research studies that suggest a
relationship between adverse events and
multiple vaccinations exist." She added,
"The recommendation for more research on
subpopulation risk factors in relation to
multiple vaccine combinations has been
included in the Institute of Medicine (IOM)
Report on Multiple Vaccines."
Regarding findings by Elliott and colleagues
in August, the United Mitochondrial Disease
Foundation stated that mitochondrial disorder
is likely to be at the core of many health
conditions including autism. These latest
findings provide additional evidence that the
link between autism and mitochondrial
disorders is not 'rare,' as government
officials characterized it after the Poling
family was recently compensated for their
daughter's vaccine injury.
SafeMinds Vice President Lyn Redwood stated,
"Research clearly demonstrates that mercury
in vaccines causes mitochondrial damage, yet
mercury-containing vaccines continue to be
administered to infants and pregnant women
despite the IOM's recommendation that these
populations not be exposed." SafeMinds
believes the government should initiate a
comprehensive study of
vaccinated/unvaccinated populations examining
all health outcomes, vaccine components and
synergistic interactions.
Environmental mercury exposure has also been
linked to mental retardation, Attention
Deficit Disorder and autism. SafeMinds
President Theresa Wrangham added, "Mercury in
all forms is neurotoxic and is increasingly
impacting public health. Congressional
action is needed to shift industry from its
use in medicine, utilities and consumer
products."
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First Balanced Forum on Vaccines Generates Both Light -- and Sparks
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Reprinted from The Deirdre Imus
Environmental Center e-newsletter.
The historic, first "fair and balanced forum
on vaccines" generated light -- and sparks --
last Thursday among experts on both sides of
the safety issue, as well as from parents
concerned about new vaccine mandates in New
Jersey. Nearly 300 parents, legislators,
public health officials and physicians packed
an auditorium at Hackensack University
Medical Center (HUMC) to see the sometimes
heated discussion, and hundreds more watched
and submitted questions online.
"There is a real crisis in confidence with
parents over the issue of the safety of
vaccines. But there is no one [on this
panel] who is against vaccines. We are all
interested in vaccinating safely and making
vaccines as safe as possible," said
children's health advocate, forum host and
moderator Deirdre Imus, founder and President
of The Deirdre Imus Environmental Center for
Pediatric Oncology® (dienviro.com) at HUMC, a
501(c)3 not-for-profit corporation. The
speakers included:
- Heather Howard, Commissioner, NJ
Department of Health and Senior Services
- Jeffrey Boscamp, M.D., FAAP, chair
of the American Academy of Pediatrics, New
Jersey Chapter Infectious Diseases Committee
and chairman and physician-in-chief of the
Joseph M. Sanzari Children's Hospital at HUMC
- David Kirby, journalist and author,
Evidence of Harm: Mercury In Vaccines and The
Autism Epidemic: A Medical Controversy
- Margaret C. Fisher, M.D., FAAP,
chair, Section of Infectious Diseases,
American Academy of Pediatrics, and medical
director, The Children's Hospital at Monmouth
Medical Center
- Lawrence Rosen, M.D., Clinical Assistant
Professor of Pediatrics, New Jersey Medical
School, Vice-Chair, AAP Section on
Complementary, Holistic and Integrative
Medicine, Medical Advisor, The Deirdre Imus
Environmental Center for Pediatric Oncology®.
Click
here to view web cast, speaker slides and
supporting information.
"This is an important conference," Dr Boscamp
said. "People are concerned and their
concerns need to be addressed. By bringing
people together to discuss the science behind
these vital issues, people will be able to
make informed decisions based on facts."
During a Q&A session that lasted more than an hour, the forum generated sharp remarks from parents, including those who reported their children developed autism following vaccines, leaving them in a daily crisis to cope. A main issue is lack of informed consent, so parents can be the final arbiter of their children's health. This year, New Jersey became the first state to require mandatory flu vaccines for young children. NJ Assembly bill no. 260, introduced in the state legislature last month, would give parents a path for "conscientious exemption" to mandatory immunizations.
Speaking on behalf of parents, Ms. Imus said
many are demanding informed consent because
they do not feel public health officials are
considering the legitimate issues raised by
researchers, pediatricians and families.
Paramount among the concerns expressed by
many parents were:
- There have been no studies that prove the
safety of giving multiple vaccines at one
time.
- The toxins in vaccines, primarily the
continued use of mercury in flu vaccines and
increasing amounts of aluminum in many
vaccines, both known developmental
neurotoxins.
- And the "one size fits all vaccine
program" that fails to consider individual
vulnerabilities and family medical histories
that indicate a child could be at a higher
risk for an adverse vaccine reaction.
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Autism's Financial Burden
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By SafeMind's President Theresa Wrangham
Reprinted from Mothering magazine website
(will be featured in March/April print
issue).
Twelve years ago, tears stained my face as my
husband and I were told that our eldest
daughter, Rachel, had autistic tendencies
that would require further diagnostic
investigation. Six months later, Rachel was
diagnosed on the autism spectrum as PDD/NOS,
or in layperson's terms, mildly autistic.
Even so, she would face significant
challenges in everyday life requiring
treatment to mediate the long-term effects of
this disorder. Early medical advice about
treatment focused on core features of
autism's deficits in language delay, social
skills, relationship development delays, and
reasoning capacity. Years later, we would
discover the value and cost of the biomedical
treatments that have jump started her more
recent improvements.
When Rachel was diagnosed, I was a
stay-at-home mom and my husband Scott had a
good job with good health insurance coverage,
or so we thought. It quickly became apparent
that insurance would not cover the recognized
treatments that Rachel needed to improve and
certainly not off-label biomedical treatments
we have used with success. We were a
middle-class family with assets; we were told
that we didn't qualify for services to assist
us in meeting the financial burdens of
treatment. If we could not find a means to
fund treatment and education now and in the
future for Rachel, our family faced a
financial downhill slide to disaster. Autism
was now the predator stalking our family and
threatening Rachel's potential, our hopes for
retirement, and college opportunities for
both our children.
Scott, having previously worked on Alaska's
North Slope in the petroleum field, quickly
sub-contracted for a position in Alaska. For
more than half a year, Scott worked a
two-week-on and two-week-off schedule in
Alaska's Arctic Circle to cover treatment
costs and allow us financial stability. From
then to now, we continue to pay normal
business expenses and all therapy costs not
covered by insurance. Our family's direct and
indirect expenses for Rachel's treatment last
year was approximately $45,000. The story for
many families facing this all too common
financial scenario is anything but rosy, with
many unable to meet the financial obligations
that autism treatment entails.
In fact, studies published by Harvard
University found societal costs for caring
and treating individuals with Autism Spectrum
Disorder (ASD) in the US to be $35+ billion
per year. Direct costs per ASD individual
include direct medical costs and behavioral
therapies and are estimated to be
$29,000-43,000 per year. Annual indirect
costs include direct non-medical costs, such
as special education, camps, child care, lost
income, income differentials, and
alternative/off-label therapies. These
indirect costs to the individual and/or
family are estimated to range from $39,000 to
nearly $130,000 (Michael Ganz, Understanding
Autism: From Basic Neuroscience to Treatment,
(city, state: CRC Press, 2006)). Also of
interest, the American Medical News reported
the medical loss ratios of the largest
for-profit insurers and found that profits
for the biggest health care providers
continued to rise, while the amounts these
providers spent on care declined.
Unsurprisingly, 50 percent of US bankruptcies
are attributable to illness, or medical
bills, indicating that the ASD community is
not alone in their struggle for health care
and treatment (Steffie Woolhandler, "Illness
and Injury as Contributors to Bankruptcy,"
Health Affairs (2005).
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Ready to Give Back?
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SafeMinds is looking for volunteers
SafeMinds is a volunteer-driven organization
and we are currently looking for additional
people to help meet our goals.
We are looking for volunteers to help with
the following activities:
- Writers who can help analyze studies and
help draft articles for the SafeMinds website
and newsletter.
- Clerical and data entry support to assist
our environmental committee.
- Fundraising volunteers who can help with
current initiatives or do their own
fundraising on behalf of SafeMinds.
Please contact us if you are interested in helping.
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Visit The Age of Autism
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The Age of Autism is the nation's first daily Web newspaper for the environmental-biomedical community - those who believe autism is an environmentally induced illness, that it is treatable, and that children can recover. For the most part, the major media in the United States aren't interested in that point of view, they won't investigate the causes and possible biomedical treatments of autism independently, and they don't listen to the most important voices - those of the parents. Visit the website at www.ageofautism.com.
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