|
|
SafeMinds Funds New Research Studies
|
|
|
While we encourage all families to take
aggressive steps to prevent exposure to
thimerosal and mercury from all sources, our
mission is to support medical research that
provides credible findings supporting the
validity of the mercury/autism hypothesis.
Our ultimate goal in funding and supporting
this research is a remedy, or cure, that
will reverse the damage incurred by exposure
to this well known neurotoxin.
Since its inception in 2000, Safe Minds has
sponsored almost $1,000,000 in research
related specifically to mercury and adverse
neurological outcomes, including autism. This
level of financial commitment establishes
Safe Minds as the largest private non-profit
organization funding mercury and autism
related research.
Below are brief descriptions of the most
recent studies to be funded by SafeMinds that
continue to bring us closer to our goal:
Influence of Thimerosal on Methionine Synthase and Glutathione in Mouse Cortex, Richard Deth, PhD, Northeastern University.
This project is designed to evaluate the
role of lower glutathione (GSH) levels and
reduced Methionine Synthase (MS) activity in
the neurochemical and behavioral effects of
thimerosal in different mouse strains. We
anticipate that the results will provide a
valuable bridge between different lines of
investigation and will help to illustrate the
importance of genetic background in
determining the metabolic effects of mercury
exposure.
Vaccinated/Unvaccinated Autism Baby
Sibling Study, Carole Samango Sprouse, Ed.D.,
The Focus Foundation
The incidences of Autism Spectrum Disorder
(ASD) has increased significantly in the last
ten years and is estimated to occur in every
150 individuals. Siblings of ASD children
have an increased risk of 11% for developing
the disorder. This study will follow the
siblings of children with ASD, who provide a
fertile ground to follow the
neurodevelopmental progression of an at-risk
population, as well as the effects of
vaccinations on development. These siblings
also provide a "window of opportunity" to
observe any potential interactions between
vaccinations and an ASD diagnosis.
|
|
2007/2008 Flu Vaccine Brochure Now Available
|
|
|
SafeMinds has updated their Flu Vaccine
brochure providing current information on the
flu vaccines available for 2007/2008 flu
season. This brochure effectively
communicates the risks that remain in the
thimerosal- containing vaccine, as well as
which vaccines are available do not contain
thimerosal.
We encourage you to distribute this brochure
in your doctor's office and other places
people may be seeking information regarding
these vaccines. Please feel free
to download
the file here or contact us to receive copies of the brochure in the mail.
|
|
IOM Workshop Calls for Greater Research Focus on Environmental Causes of Autism
|
|
Advocacy organizations support shift from exclusively genetic model to environmental research emphasis
Washington, DC - The Institute of Medicine
(IOM) last Friday released an online
prepublication of the April 18-19 workshop
Autism and the Environment, demonstrating a
marked shift in the research agenda from
heritability factors to toxic environmental
exposures in the development of autism. "The
National Autism Association (NAA) and
SafeMinds have long called for a paradigm
shift from children with autism are
genetically defective to children with autism
are sick and treatable. Now, we have high
hopes that the recognition of the role
environmental factors (including vaccines and
heavy metals) play in the development of
autism will lead to effective treatments for
hundreds of thousands with autism and
prevention for susceptible infants," said
Laura Bono, NAA and SafeMinds Board Member,
IOM Planning Committee member and presenter
at the workshop.
In response to a request from the U.S.
Secretary of Health and Human Services, the
two-day workshop brought together the
nation's leaders in autism research from
government agencies including the Centers for
Disease Control and Prevention (CDC), the
National Institute of Mental Health (NIMH),
the National Institute of Child Health and
Human Development (NICHD), and the National
Institute of Environmental Health Sciences
(NIEHS). Autism community advocates from
SafeMinds, NAA and Autism Speaks were also
invited participants of the workshop, plus
scientists from Harvard, the MIND Institute,
Columbia University, and more. The experts
discussed strategies to develop a framework
for a broad research agenda focusing on the
potential relationship between autism and
environmental exposures.
Presentations emphasized the urgency of need
to combat the growing national health crisis
of autism and focused on the mechanisms by
which environmental factors (including
vaccines) such as chemicals, infectious
agents, or physiological or psychological
stress can affect the neurodevelopment of
children. In addition, discussions addressed
the infrastructure needs for pursuing the
identified research opportunities-tools,
technologies, and partnerships.
In his introductory remarks, Dr. William
Raub, Science Advisor to HHS Secretary Mike
Leavitt, expressed his hopes that the
workshop would prove to be an important
milestone in autism research. He stated: "The
planning committee recognized that vaccine
constituents, especially organic chemicals
used as preservatives or adjuvants, obviously
qualify as environmental agents that warrant
attention. . . . . Other aspects of the
autism challenge deserve similar attention,
especially the paucity of effective treatments."
Workshop participants identified a broad
range of research priorities, including:
biomarkers for diagnosis and treatment of
differing subtypes of autism; rigorous
analysis of effective treatments; a
comparison of the health outcomes of
vaccinated vs. unvaccinated children, immune
system and anti-viral therapies, and the need
for more effective chelators. The full list
is included as an appendix to the proceedings.
Mark Blaxill, SafeMinds Vice President,
member of the IOM Planning Committee and an
invited workshop participant said, "Our
scientific leadership is increasingly
realizing that ongoing epidemic denial, the
bizarre idea that current autism rates have
been with us forever, and myopic insistence
that autism is an inherited untreatable
disorder, are inconsistent with the evidence
and disciplined scientific thought. They are
certainly no longer acceptable as guiding
principles for policy."
SafeMinds Executive Director Sallie Bernard
delivered a presentation focusing on research
opportunities. Ms. Bernard called for an
"overcorrection" of environmental research
funding to make up for the last 15 years of
funding going mostly to genetics. She
outlined many of the small-scale studies
funded by SafeMinds since 2000 and said, "Now
we are at the stage where we would like to
see these types of ideas go to the next level
and, for that, we need the public side of the
public-private partnership."
In her presentation, NAA and SafeMinds Board
Member Lyn Redwood discussed the power of
public- private partnerships in solving the
epidemic of autism such as "autism advisory
boards, integration panels, the establishment
of shared research inventories, and
community-based and -driven research
initiatives" where parents as stakeholders
have their status elevated and their voices
heard. "The urgency of this mission cannot be
overstated," said Ms. Redwood. "Treatments,
especially those aimed are targeting
underlying medical abnormalities, are more
effective if begun in earnest as early as
possible. The cost of this epidemic and its
devastating impact on families is so great
that we must do all we can to prevent new cases."
Dr. Alan Leshner, publisher of the journal
Science, concluded the workshop by noting the
importance of redirecting the research
agenda: "I think this has been spectacular
and I hope I am right. I would repeat the
comment I made fairly glibly before, that is,
this is a very important start, and if we
don't do something, then shame on us."
The workshop prepublication can be downloaded
at http://www.iom.edu/AutismProceedings
|
|
SafeMinds Elects New Board Members
|
|
|
SafeMinds is pleased to welcome Scott Laster
and Gayle DeLong to the SafeMinds board of
directors.
Scott Laster has worked as an entrepreneur
and engineer in the telecommunications
industry for 20 years. He received an
engineering degree with Highest Honors from
the Georgia Institute of Technology. Scott
became involved in autism research when his
son, Luke, was diagnosed with autism in 2005.
With the biomedical interventions developed
through close cooperation between
parent-advocacy organizations and university
researchers, Luke has significantly improved.
Luke's struggles, and subsequent
improvement, have inspired Scott to advocate
for policy initiatives to prevent other
children from being damaged by medical
exposure to mercury and for expansion of
research into effective treatments for
autism. Scott lives in the Atlanta area with
his wife and two sons.
Dr. Gayle DeLong is a parent of two girls
with autism. Starting in May 2005, her family
began biomedical interventions to treat the
girls' illness. Both girls have benefited
greatly from supplements, diet, chelation,
and hyperbaric oxygen therapy. Gayle holds a
Ph.D. in international business and finance
from New York University. She teaches
international finance at Baruch College in
New York. She is a district leader of
Advocates for Children's Health Affected by
Mercury Poisoning (A-CHAMP) and an on-going
supporter of Sensible Action for Ending
Mercury-Induced Neurological Disorders
(SafeMinds). She has attended several
rallies in Washington, DC to protest mercury
in vaccines and spoke against adding vaccines
to New Jersey's mandated schedule at a public
hearing in Trenton, NJ. She lives with her
husband and two daughters in Morristown, NJ.
|
|
The 100 Days Autism Research Campaign for SafeMinds
|
|
|
THE GOAL:
* 100 Days to
* Raise $100,000 with
* 100% going to autism research
What would you do with 100 wishes?
At SafeMinds . . . we wish to find a cure for
autism. Won't you help?
The number of autism cases are growing -- one
in 150 children are now affected. This means
the wish lists are growing too. You help make
wishes come true by helping us raise critical
dollars for autism research between now and
December 31, 2007 through this campaign.
Donate $100, 100 dimes, 100 pennies -
whatever you can. Please consider asking
family and friends to support our campaign as
well. All donations are tax-deductible.
Here is how you can help:
* Launch a personal fundraising page here
at www.firstgiving.com/SafeMinds
and share
that page with friends and family to help
raise awareness and funds.
* Mail a check to SafeMinds at 254 Trickum
Creek Road, Tyrone, GA 30290
* Securely donate
online at our website
For questions about additional fundraising
ideas, please contact Elizabeth Kilpatrick at
eksafeminds@gmail.com.
|
|
SafeMinds funds launch of Age of Autism
|
|
|
The Age of Autism is the nation's first daily
Web newspaper for the
environmental-biomedical community - those
who believe the autism epidemic
is a health crisis that requires urgent
action; that autism is an environmentally
induced illness, that it is treatable, and
that children can recover.
Visit
the Age of Autism website to read more.
|
|
New Book Benefits Autism Research
|
|
Wall & Mean: A Novel by Tom Bernard
Tom Bernard, the father of a child with
autism, is
publishing his first book, Wall and Mean.
Proceeds
from the sale of the book will benefit
SafeMinds and
Autism Speaks.
Book Description
"Captures the tone and feel of Wall Street
better than
anything I've ever read. A snapshot of the
trader's
soul."-Michael Lewis
Wholesome Pennsylvania kid and Wall Street
phenom George Wilhelm is poised to become one of
the most successful young bond traders in the
business. A gambler at heart, George has
turned his
old poker skills into big profits on the
Emerging
Markets desk. Now those same skills have got
him
trying to out-trade the sports bookies in
Vegas, and
George's hard-won security is in jeopardy as
he racks
up a ruinous gambling debt.
When the Brooklyn mafia sends two hitmen to
collect,
things turn ugly in a hurry: these boys have
clearly
never heard of a fair fight. George must
scramble to
keep his pursuers away from the bank and his
family,
while risking everything on an all-or-nothing
trade. Set
in the glitter and grime of New York City
during the
bond-market boom of 1993, Wall and Mean is a
fast-
paced and surprising debut from a veteran of The
Street.
Click
here to order your copy now.
|
|
Autism Research Institute Announces New Research Initiative "Parents as Partners"
|
|
Melds Scientists and Stakeholders in a Novel Research Program
San Diego, CA. - The Autism Research
Institute--one of America's oldest and most
progressive autism research organizations--is
pleased to announce a new autism research
initiative: "Parents as Partners" in autism
research. Parents of children with the
diagnosis of autism raise millions of dollars
annually for autism research, but typically
they have little say about where research
efforts are focused. This ambitious new
initiative acknowledges the fact that parents
are a critical component of autism research
and their unique experiences and observations
are valuable resources in guiding research
into the most promising areas of
investigation in treating this disease.
Parent representatives from the participating
advocacy organizations serve to inform,
solicit, review and fund autism research
following the guiding principle of helping
individuals living with autism as quickly as
possible.
Funding mechanisms include:
- Therapeutic Development: Funding the
initial exploration of innovative and
potentially groundbreaking clinical
interventions in the field of autism.
- Evidenced-Based Development: Funding
small-scale investigations that
scientifically evaluate therapeutic
interventions utilizing placebo controlled
and blinded study design.
- Research Support: Funding ancillary
expertise necessary for research design, data
mining, data analysis and manuscript
preparation.
- Clinical Fellowships: Supporting
post-doctoral training for clinicians
interested in treating children with autism
utilizing a comprehensive biomedical,
research-based approach.
Organizations participating in the "Parents
as Partners" research initiative include
Autism Research Institute, Autism One, Autism
Society of America, National Autism
Association, Generations Rescue, SafeMinds,
Treating Autism and Unlocking Autism.
Deadline to apply:
Applications for funding are due December 15,
2007, with awards announced in January, 2008.
To learn more about the Autism Collaboration's Research Initiative go to: www.autism.org.
For information regarding applications contact: ResearchPartners@autism.com
|
|
Join MIA_MercuryIndcedAutism Action List
|
|
Please join a new Yahoo group called MIA-Mercury
Induced Autism. The goal in the formation of
this list
was to create a resource where parents,
grandparents, and anyone whose life has been
impacted by mercury induced autism could go to
seek information or find support.
To join the discussion please click here.
|
|
|